CTCDD: Council Meeting 7-2-08

Council Meeting 7-2-08


The 152nd meeting of the CT Council on Developmental Disabilities was held on Wednesday, July 2, 2008, at the Office of Protection and Advocacy, Hartford.


Council Members Present:  Cathy Adamczyk, Chair; Joyce Baker; Sheila Crocker; Lisa Davis; Kathryn duPree; Mary Eberle; John Flanders; Leo Germain; Jamie Graham; Armand Legault, Vice Chair; Jennifer Lortie;  Peter Morrissette; Chad Sinanian; Nancy Taylor; Anita Tremarche.


Absent:  Jousette Caro, Patricia Carrin and Patricia Tyler.


Excused Absence:  Patricia Anderson; William Broadbridge; Gabriela Freyre-Calish; Larry Carlson; Fred Frank; and Tom McCann.


Guests Present:  Three (3) personal assistants.


Staff Present:  Mary-Ann Langton, Ed Preneta and Angela Spino


Ms. Adamczyk opened the meeting as an Executive Committee meeting at 2:30 p.m. but a quorum for a full Council meeting was achieved by 2:43p.m.




Ms. Adamczyk asked for a motion to approve the minutes of May 6, 2008.


Ms. Taylor moved for acceptance.  Mr. Germain seconded.

The minutes passed unanimously.


2008 and 2009 Budget Update



Mr. Preneta reported that the Council had some flexibility with regard to funding continuation and new initiatives.

Following the May 6, 2008 meeting, the Council had $3,543 in Undesignated funds for the Councilís use.  On July 2, 2008, the Council received a check for $2,576 from Homeland Security in the capitol region to reimburse the Council for Ms. Langtonís participation in training first responders.  These funds were deposited in the Undesignated line item.  Undesignated funds totaled $6,119.

Additional funds totaling $7,100 set aside for Life Threatening Public Policy training were also available for other uses.  In addition to Ms. Harriet McBryde Johnsonís untimely death, Mr. Nat Hentoff called on July 1, 2008 to report that his health prevented him from presenting in Connecticut in October.

On May 6, 2008, the Council set aside up to $30,000 for a symposium on aging-in-place.  Planning for that meeting to date committed $10,285 of those funds.  Another $4,715 was expected to be committed in fees and honorariums for presenters. An additional $5,000 was expected to be committed to explore aging-in-place virtual communities-without-walls from Boston to Washington, DC.  Since $21,000 of Able Lives 2008 funds will be used for a Ĺ hour CPTV Local Lens TV show on people with disabilities who are older and older caregivers aging-in-place in Connecticut,  about $10,000 of symposium funds may become available for other uses.

Funds for the CT Family Support Council still have not been committed.  The Family Support Council has recruited a parent and a fiduciary agent is being explored.  The fiscal year for this initiative will be July 1, 2008 through June 30, 2009.  With such a fiscal year, the Council can postpone until well into 2009 any decision regarding on-going funding for the Family Support Council.



          In 2009, the Council is obliged to plan based on the federal budget proposed by the federal Administration.  That budget proposes level funding of $695,612 for the Council, however, both the US House and Senate proposed federal budget increases for the Council.  The Councilís 2009 budget could be $712,000 or $715,000.  Based on level funding, the Council is considering more continuation and new initiatives than it can afford, however, the Council may wish to take some risks given the likely availability funds as described above.



2009 Initiatives and State Plan Amendments


          Ms. Adamczyk opened discussion regarding proposed 2009 initiatives and St. Plan amendments.


          Mr. Preneta circulated comments on the Councilís proposed 2009 initiatives and St. Plan amendments from the Office of the Child Advocate in support of the CT Family Support Council, the Office or Protection and Advocacy in support of  Family Lives, Mr. Frank Reed in support of Medical Safeguards and Mr. Michael Selvaggi encouraging the Council to act to improve the State Department of Educationís due process procedure.


          He also noted that the Councilís proposed 2009 initiatives total $51,758 more than the Council can afford.


CT Family Support Council - $0

Ms. Adamczyk noted that during the Councilís June 16, 2008 ďnon-meetingĒ, there was general consensus that the Council intended to provide only one year of funding to the Family Support Council.  Also, since this initiative was yet to ďget off the groundĒ its fiscal year will significantly overlap 2 Council fiscal years.  The Council does not need to consider future funding until at least July 2009.  The Council agreed by consensus.



Grassroots Intensive Parent Training  - $33,728

Ms. Spino said the intent of this initiative is to follow-up the September 24, 2008 Positive Behavioral Supports conference with a short, intensive, subsidized parent training program designed to influence systems change instead of just individual issues.  While the Council supported ďPartners In PolicymakingĒ training for a number of years, Partners never really resulted in producing many people to influence systems change.  Most people used their knowledge to address only their issue.  Something better than Partners is needed.  The Council agreed by consensus to set aside funds and to approach the University Center for Excellence in Developmental Disabilities (UCEDD) to develop a program.


Mothers From Hell - $5,000

          Ms. Spino said about 60 parents have been recruited for membership.  Expected costs include membership dues, t-shirts, hats, brochures, meeting space, food and beverages, and speaker costs for the start-up of a free-standing organization.  Regardless of some reservations regarding the name and focus on aversives, restraint and seclusion, the Council agreed by consensus to set aside funds.


Social Role Valorization (SRV) Training with the Department of Social Services and Money Follows the Person - $21,795

            Mr. Preneta reported that the June 2008 Status Report to the 2007 Long Term Care Plan for Connecticut recommends developing training for public and private providers to better assist families and other informal caregivers to develop the supports necessary to allow a person to live in their community.  To implement this, ďadministrative and other actionsĒ states that all providers participating in the Money Follows the Person (MFP) Rebalancing Demonstration are required to participate in values-based training.  700 people are to be served by MFP.  MFP includes 20 transition coordinators to assist people to transition out of skilled nursing facilities (SNF) and other institutions.  Following a meeting with the Department of Social Services (DSS) on June 30, 2008 it was discovered that the intent is to also train Housing Coordinators, Home Care providers, Access Agencies and DSS staff.  The actual number to be trained could be over a thousand.  While DSS will be organizing and providing some training, DSS cannot do justice to SRV.  DSS would strongly encourage providers to attend SRV training presented by the SRV Implementation Project.  It is expected that 100 providers would sign-up per workshops.  Council members would also be encouraged to attend.  The following full day training was proposed but will be reorganized into 2 sets of interrelated training.  The dates may also change.

Mid-April:  Basic SRV:  The Human Service Recipient:  Understanding and Addressing Vulnerability:  Insight Into The Lives of People with Impairments

Mid-May:  Intermediate SRV:  Understanding the Societal Context:  What People With Impairments are up Against

Mid-June:  The Tension Between Personal Autonomy and Community Living:  An Examination of the Rights Issue

Mid-September:  The Importance of People With Impairments Having Valued Roles in Society

Mid-October:  Crafting Valued Roes for one Person

Mid-November:  Problem Solving From a Social Role Valorization Perspective

The Council agreed by consensus to set aside funds.


Robotics -$10,000

Robotics Advertising - $6,000

Ms. Taylor spoke in favor of continuing support for the robotics competition with Trinity College and adding funds to better promote the event.  The robotics competition has been modified to focus on in-home robots and may be carried out in conjunction with Councilís proposed  Visitable SmartHome initiative.  The new plan is to introduce competition on a robot that puts away groceries.  The robot will (1) find its way to the grocery store, (2) pick up a package, a cold item and an egg, (3) return home, (4) trigger the opening of a refrigerator, and (5) put away groceries without breaking the egg.  A symposium speaker will include an expert on SmartHome from Carnegie Mellon University.  The Council will also propose a presentation by Trinity College on service robots at a national conference of Councils on Developmental Disabilities.

            Additional funds will be set aside in the Council budget for formal, even paid, advertising for the event, since the Council is so far on the forefront of the use of interactive, social robots as service robots.

          The Council agreed by consensus to support the robotics competition.

           Mr. Flanders moved to set aside $6,000 to advertise the competition.  Ms. Taylor seconded.  There was no discussion.  The motion passed unanimously.


Youth in ADAPT Ė Disability Resource Center  - $9,000 (on hold)


Ms Taylor said some Council members continued to be uncomfortable exposing youth under the age of 18 to demonstrations, protests and rallies.  A decision to continue funding for this initiative was postponed until after a July 9, 2008 site visit.  Joining Ms. Davis on the site visit will be Ms. Taylor and Mr. Legault.


Mr. Preneta noted that the Council had thus far made decisions totaling $85,523, assuming funds for Youth in ADAPT will be continued, and that new 2009 initiatives total $277,747, for a grand total of $363,270.  This was $54,758 more than the Council could afford.


          Ms. Adamczyk asked the Council to prioritize new 2009 initiatives.


Technical Assistance to People First - $5,000


          Mr. Sinanian encouraged the Council to support funding to provide technical assistance to People First for strategic planning that could include hiring a strategic planning facilitator, holding a Board strategic planning meeting, enable follow-up visits by the facilitator, enable leadership and agency management training and expand member participation.

          The Council agreed by consensus.


Day of Respect - $10,000


          Ms. Taylor thought $10,000 for activities related to a Day of Respect may be more than necessary, but she supported the initiative.

          The Council agreed by consensus.


Employment Policies and Practices - $0


          Ms. duPree noted that there was considerable activity in the state already underway in the state regarding employment and that a Council initiative in this area may not be necessary.

          The Council agreed by consensus.


Mr. Preneta calculated that the Councilís was $14,258 over-budget.


          Ms. Adamczyk noted that since there was a great deal of flexibility in the amount of funds needed for each continuing and new initiative, and that there was some flexibility expected within the Councilís 2009 budget, and with the removal of funds for Employment Policies and Practices, the Council could take a reasonable risk with $14,258 to support all remaining proposed initiatives:

        State Guide to Selected Services:  How They Really Work - $19,747

        Visitable SmartHomes Initiative - $40,500

        Changing the Culture at ConnDOT Regarding Wheelchair Accessible, Affordable, Available and Inclusive Public Mass Transportation - $40,500

        Emergency Back Up Personal Assistants Initiative - $40,500

        Start-up a Not-for-profit Home Health Care Agency Modeled After Family Lives, Massachusetts - $40,500

        Start-up a Medical Safeguards Project Modeled After the  

            Massachusetts Medical Safeguards Project - $40,500

          The Council agreed by consensus.


Ms. Taylor moved to adjourn.  Mr. Germain seconded.  The motion passed unanimously.


The meeting adjourned at 3:43 p.m.


The next Council meeting is Tuesday, September 16, 2008 from 11:00 a.m. to 2:00 p.m. at the Institute of Technology and Business Development/CCSU, New Britain.


                                                                   Respectfully submitted,




                                                                   Ed Preneta




Content Last Modified on 9/19/2008 1:36:18 PM